I love purple. Not only because it is so pretty, but because it stands for something, and someone that I believe in. Purple is the color that symbolizes Cystic Fibrosis awareness. I know that in today's world, there are so many cure's being looked for, that it can be easy to just write this one off as one more cause that is great for someone else to support. But for me it is so much more than that. There are names, faces, not just of people, but of people I love. Why am I writing this now? Well for starters it is Cystic Fibrosis Awareness month. And next week I am participating in a fundraiser walk. But this post also coincides with my Mother's Day series. Yes, I know I got behind on those, and so this one is a little out of order.
But I want you to meet my motivation for this walk.
It seems weird to write this to you guys, so I am just going to write to her, and let you guys in on it =)
Lindsey, In the last year and a half I have seen you grow and change so much. From the moment I saw you hold your little girl, something about you was different. All the fears about what being a mom would be like seemed not to matter, and I guess I can understand why when I see Rylee's face. She is beautiful, and you are doing a beautiful job with her. Every hug, smile and laugh on her face is proof of your love and care for her. She is growing up in such a caring environment, and is so in love with her mommy! I love watching your little family as she grows.
In the last year you also changed in your view of life with Cystic Fibrosis. I saw your determination to fight CF grow, and it is still growing. I am so proud of the way you are committing to raise money, and awareness for research. But more than that, I am proud of your decisions to take care of you. Every time you do your therapies, even though you are tired, or it just doesn't seem worth it, you are keeping your promise to Rylee. I know it may seem backwards at times, but by doing what is best for you, you are doing the best for her too. Keep it up!
I love you so much Linds, and I am glad that I get to be your cousin, and even better your friend.
My cousins were diagnosed with Cystic Fibrosis when they were 5 and 7 after years of battling "asthma". The diagnosis was a relief in some ways, because it was an answer to what was wrong. However simply knowing what you have is not a comfort when there is no cure.
For those of you who don't know what Cystic Fibrosis is, or how it effects peoples daily lives, here are a couple links where you can learn more, or ask me in person.
http://www.cff.org/
http://en.wikipedia.org/wiki/Cystic_fibrosis
http://ghr.nlm.nih.gov/condition/cystic-fibrosis
If you are interested in supporting our team this week by donating, we would really appreciate it. It sounds cheesy, but literally every dollar makes a difference. Here is the link. http://www.cff.org/Great_Strides/ColleenCraynon8044
Thanks for lending me your time =)
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